Meet the Little Lobbyists
Introducing some awesome children with complex medical needs from around the country. Kids who love to play with toys, learn with friends, love their families, and bring light, joy, and laughter into the world. Below are their stories, told by those who love them, about the access to health care that makes their lives possible. If you'd like to share the story of your child with complex medical needs with us, please visit our story form.
Emma, NC May's Featured Little Lobbyist!
"In many ways, Emma is like any other four-year-old: she can run, play, and climb stairs; she’s learning to read, and she loves playing catch. Despite her premature birth at just 28 weeks and a list of diagnoses that include bilateral vocal cord paralysis and cerebellar dysgenesis — she is an extraordinarily independent child.
The one thing Emma cannot do on her own: breathe."
Meet Anna. She is a typical 5 year old in many ways. She loves to play with her brothers. She loves Play-Doh and to play with her dolls. She is very into princesses right now. Anna loves to sing along to songs from Disney movies.
Meet Melanie. She’s four years old and loves swimming, playing catch, and jumping on her trampoline.
Meet Pierce. Pierce is three years old. He loves playing with his light up train and going to the aquarium.
Meet Timmy. Timmy is a newly minted kindergarten graduate who loves robots and pirates, plays on a local soccer team, and dreams of growing up to become a police officer, firefighter, “ambulance man,” garbage collector, or robot repairman.
Meet Charlie. She is five years old and loves playing outdoors, live music, things with numbers, and anything with animals.
Meet Aadi. Aadi was born 2 months premature with cerebral palsy.
Meet Simon. He loves music, Disney movies, and playing Mario Kart with his big sister.
Meet Xiomara. After spending the first five months of her life in the hospital, Xiomara is eager to explore the outside world.
Meet Jack. He loves all things science related, especially weather and storms
Meet Victor. He loves going to school with his friends and playing Miracle League Baseball on the weekends.
Meet Jack. He loves Mickey Mouse, watching bubbles, and being read books.
Meet Claire. She loves her dogs and meeting people. A social butterfly with no fear. Lots of hugging for everyone.
Meet Myka. She loves the Girl Scouts, ice skating, playing with her friends.
Meet Ethan. He loves piano, horseback riding, going to church, and spending time with his family and friends.
But wait, there's more!
The above examples are just a tiny sample of the stories we've collected from hundreds of Little Lobbyists kids all over the country. Check back soon, because we are adding more stories all the time! We're also constantly looking for more stories to share. If you care for a dependent with complex medical needs and would like to make sure their concerns are represented by the policy makers whose job it is to protect them, we invite you to share their story with us here.