Meet the Little Lobbyists

Introducing some awesome children with complex medical needs from around the country. Kids who love to play with toys, learn with friends, love their families, and bring light, joy, and laughter into the world. Below are their stories, told by those who love them, about the access to health care that makes their lives possible. If you'd like to share the story of your child with complex medical needs with us, please visit our story form.


Ethan, WV  April's Featured Little Lobbyist! 

Ethan is from West Virginia. He loves piano, horseback riding, going to church, and spending time with his family and friends. He has Congenital Myasthenic Syndrome - Slow channel. According to Ethan's mom, Christy, "As he grows, we are teaching Ethan how to be a responsible citizen who gives back to his community, and Medicaid has given him to tools to do so. He attends school with the support of a licensed nurse, and his stroller and wheelchair allow him to explore our neighborhood. If you ask him what he wants to be when he grows up, Ethan will confidently respond: 'a substitute assistant principal, children’s doctor and barber.'"

Read more about Ethan in this Op-Ed written by his mom, "My son's life depends on Medicaid. When will lawmakers stop sabotaging his care for political gain?"

But wait, there's more!

The above examples are just a tiny sample of the stories we've collected from hundreds of Little Lobbyists kids all over the country. Check back soon, because we are adding more stories all the time! We're also constantly looking for more stories to share. If you care for a dependent with complex medical needs and would like to make sure their concerns are represented by the policy makers whose job it is to protect them, we invite you to share their story with us here.